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Total Entries: 42   Entries Viewed Per Page: 10
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Name Comments
42) Gina Morin 
Location:
NC
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Monday, July 10, 2017 10:49 AM Write a comment

Thanks. My grandchild is 8 months. Was diagnosed with infantile spasms a month ago and recently focalized tonic seizures. Thanks for your story. Scary and who would have known we would be crossing this road. But it helps to hear other stories. Hope he is still doing good. The last update I read was 2015.
41) Gina Morin 
Location:
NC
IP logged Mozilla/5.0 (Linux; Android 6.0.1; XT1254 Build/MCG24.251-5-5) AppleWebKit/537.36 (KHTML, like Gecko) Chrome/59.0.3071.125 Mobile Safari/537.36 MSN ICQ  AIM 
Monday, July 10, 2017 10:49 AM Write a comment

Thanks. My grandchild is 8 months. Was diagnosed with infantile spasms a month ago and recently focalized tonic seizures. Thanks for your story. Scary and who would have known we would be crossing this road. But it helps to hear other stories. Hope he is still doing good. The last update I read was 2015.
40) burcu 
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Sunday, December 11, 2016 08:15 AM Write a comment

wish you the best handsome Evan! :)
39) Tammy Mayer 
Location:
Hillcrest mines alberta ,
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Monday, September 14, 2015 02:29 PM Write a comment

Our son was diagnosed at five months with IS ; he had a hemispherectomy April 9,2014 . The similarities with Clinton and Evan are amazing . I've sent an email to your family and hope to hear back from you . We have truly amazing little men , and their siblings as well need to be mentioned ;)
38) Mike Stauff 
Location:
north idaho
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Tuesday, January 20, 2015 01:15 PM Write a comment

Evan glad to see your doing great. Hope to see ya all soon miss the family.mike
37) awe 
Location:
http://goo.gl/7y9r1f
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Monday, January 20, 2014 12:20 AM Write a comment

Very good blog with some very useful information on here. I'm very glad I was able to find another great website like this one. Thanks a lot for all your efforts.
36) Aunt Kee 
Location:
Eagle, Id
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Saturday, January 11, 2014 05:24 PM Write a comment

Happiest Birthday wishes to you Evan! I miss you and love you so much. I can't believe you are 4 years old today! You're such a sweet little man. Xoxo
35) Grandma Lyda and Grandpa Brian 
Location:
Eagle, Idaho
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Saturday, January 11, 2014 01:13 PM Write a comment

HAPPY 4th BIRTHDAY to you EVAN, have a great day. Love you!
34) Grandma Lyda 
Location:
Eagle,Idaho
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Saturday, November 23, 2013 07:45 AM Write a comment

Celebrating your 3rd anniversary of being seizure free and so thankful for such a wonderful grandson.
33) Abigail 
Location:
Walsall England
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Friday, September 13, 2013 06:13 AM Write a comment

Hello, I'm Abbie from England! My son has the west syndrome too! He was diagnosed with it at eight months old, after number of hospital trips! He was finally put on steroids and other tablets that didnt work, once his course of steriods stopped, I changed his milk to cows milk and within days the Seizures had stop! We thought it was fantastic but in feb 2013 Elliot started to shutter again, but if was different this time! We saw a doctor and again had the horrible EEG done, and It was confirmed that any west syndrome was back, days before his second birthday, now 7 months later, Elliot still has his episodes but not as regular! It's just nice to know through this page! I'm not the only person who been through this with their child, no one I know or met has Heard of it let alone have a child with it' brilliant page!
Keep it up
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